How have you managed to juggle your social like throughout your Illness?
Firstly another short but sweet entry I’m afraid, really not doing well right now. So cannot spend a lot of time actively doing anything, let alone something that involves a screen. Thankfully the subject doesn’t really leave me with much to say.
My social life, well what social life? I probably go out socially once or twice a year, for a maximum of 2 hours each time. I have to rest more than usual for about two weeks before and the payback is almost unbearable so these social encounters tend to be limited to important events such as weddings.
Managing even my nonexistent social life is still a pain. Every event I am invitied to has to have a serious amount of consideration. How long will I have to rest prior to the event? How will I get there and back? Does the venue have wheelchair access? Are there people attending that I am not happy seeing me ill? Is it going to be loud/bright/both? How many people will be there? How long can I go for? What meds to I need to bring with me? Is it important enough to me to suffer the payback? Most of the time the answer to that one is no, maybe that should be the first question, would save having to think about all the others.
Basically my “social life” is limited to in house stuff with family and very close friends (even then with regular rest periods). School runs (with support from mum/dad or other school mums).
Then, of course, there is the place where my nonexistent social life ended up. The internet. Thank God for my online friends, spoonies and non spoonies that have loved me, helped me and supported me through so much!!!! You are awesome wonderful people and I’m thankful for you every single day! Mwah!